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    A cosmos of chronic illness

    When I became a chronic illness patient after my diagnosis,  it took me a while to realize I was part of the „spoonie community“. I found out that such diseases rarely come alone. Most of the patients seem to have a whole catalogue of afflictions. I don’t. I have CLL and my immune system does not really deserve its name, but that’s it. However, once you are a spoonie, chronic health issues seem to pop up everywhere.

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    Chronically partying

    My chronic disease is an invisible one, which means that there will always be quite a lot of things you don’t see by just looking at me. In summer, I went to my home country where I wanted to meet up with each and everybody. I had a booming social life and was surprised by my own activity level. People who know about my CLL are usually disappointed when we meet, because there is not much to see. I will tell you about the things none of them could see while I was partying. Continue Reading

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    How the other half dies

    Today, on my 43rd birthday, I would like to tell you about two amazing experiences I had when I recently traveled through India. Both of them were extremely physical. One of them made me aware of cultural differences in our attitude towards death. The other one gave me insights about the poorest of the poor – and how the other half dies. Continue Reading

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    Body, Lifestyle, Soul
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    Dealing with a weak immune system – what works

    My immune system is so delicate. A sneeze turns into a cold turns into bronchitis turns into pneumonia. I am not kidding. I have been trying to boost my defense for at least twenty years. 99 percent of the usual natural remedies don’t work for me. Initially, when I found out that I had CLL it seemed like a logical consequence of those millions of viruses and bacteria which have inhabited my body. Of course, I still try to improve my resistance against infections. Continue Reading

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    Body, Specials
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