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    I have this thing about shoes

    I once went to a party where people had done their very best to dress up  – and then they all had to take their shoes off. The hostess was wearing an extremely tight and short cocktail dress, but she combined it with scuffs and the overall effect was ridiculous. (Also for the guests in their hole-in-toe socks) If you do your very best to look good during those bedridden or homebound days, don’t forget to choose your shoes carefully. I have summed up the golden rules for spoonie shoes for you here. Continue Reading

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    Work: Being one step ahead of my chronic disease

    Do you know the saying that bad news travel fast? Well, so does chronic disease. Once you are diagnosed, you are constantly aware of symptoms and their influence on your life. And within shortly, you have to adapt to a completely new lifestyle. I try to beat my cancer by being faster. As long as I am strong enough, I want to be one step ahead. Continue Reading

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    My last journey but not the final one

    Last year I went to see my doctor, because I wanted to plan my future with him. I had decided to make the best use of the good times I still had, but I needed him to endorse my visions. He didn’t. I thought: “When life gives you lemons, make lemonade” – and I actively looked for alternatives. Sounds easy. Isn`t easy though. Continue Reading

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    Invisible Illness: Your life versus my life

    On the surface, your life and mine might not seem that different. We get up, we work, we have lunch. Let me compare an average morning. But this time, I will describe what is really going on. Not just the things you see. I will let you have a look at what goes on beneath the tip of the iceberg and unveil my invisible life.  Continue Reading

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