My chronic disease is an invisible one, which means that there will always be quite a lot of things you don’t see by just looking at me. In summer, I went to my home country where I wanted to meet up with each and everybody. I had a booming social life and was surprised by my own activity level. People who know about my CLL are usually disappointed when we meet, because there is not much to see. I will tell you about the things none of them could see while I was partying.
On the surface, your life and mine might not seem that different. We get up, we work, we have lunch. Let me compare an average morning. But this time, I will describe what is really going on. Not just the things you see. I will let you have a look at what goes on beneath the tip of the iceberg and unveil my invisible life.
Having talked to other spoonies, I have found out that there are two kinds of night sweats – one that does not depend on the room temperature and one that does. Here, I will show you how you can deal with excessive perspiration, if you are comfortable sleeping in a cold room. Please also check whether you have an underlying health problem.
Coping was difficult though, especially when I went back to the grindstone after our holiday. As much as the trip had been a preparation for the practicalities of my future life as a chronic disease patient, it had been an escape. I was not only a cancer victim, I was also in the early stages of a pregnancy and I had no idea if I was going to be able to give birth to the baby. It was an intangible situation – I felt life and death were embracing me at the same time.