It has been three years since I was diagnosed with CLL. I often wonder in how far my health condition has deteriorated since then. The lab results are an important indicator, of course. But the strength (or weakness) of my immune system is equally important.
A few years ago, I would have defined “achievement” in a different way. Being chronically ill, I have learned to set my goals with greater flexibility. Looking back at this year which is soon going to end, I see that I have done all the things that I wanted to do, although I had to alter my schedule various times.
My chronic disease is an invisible one, which means that there will always be quite a lot of things you don’t see by just looking at me. In summer, I went to my home country where I wanted to meet up with each and everybody. I had a booming social life and was surprised by my own activity level. People who know about my CLL are usually disappointed when we meet, because there is not much to see. I will tell you about the things none of them could see while I was partying.
On the surface, your life and mine might not seem that different. We get up, we work, we have lunch. Let me compare an average morning. But this time, I will describe what is really going on. Not just the things you see. I will let you have a look at what goes on beneath the tip of the iceberg and unveil my invisible life.
Having talked to other spoonies, I have found out that there are two kinds of night sweats – one that does not depend on the room temperature and one that does. Here, I will show you how you can deal with excessive perspiration, if you are comfortable sleeping in a cold room. Please also check whether you have an underlying health problem.