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Leisure

    Chronically partying

    My chronic disease is an invisible one, which means that there will always be quite a lot of things you don’t see by just looking at me. In summer, I went to my home country where I wanted to meet up with each and everybody. I had a booming social life and was surprised by my own activity level. People who know about my CLL are usually disappointed when we meet, because there is not much to see. I will tell you about the things none of them could see while I was partying. Continue Reading

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    My last journey but not the final one

    Last year I went to see my doctor, because I wanted to plan my future with him. I had decided to make the best use of the good times I still had, but I needed him to endorse my visions. He didn’t. I thought: “When life gives you lemons, make lemonade” – and I actively looked for alternatives. Sounds easy. Isn`t easy though. Continue Reading

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    Hoobies for Spoonies

    A diagnosis turns your whole life upside down and changes your point of view. It makes adaptations necessary – in many areas. One of the things I wondered about was if the leisure time activities I liked were still alright for me or whether I had to find new ones. Continue Reading

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    Why Instagram has changed my life

    I have been on Instagram for how long…. a month, maybe? People kept telling me that I “needed” Instagram and I didn’t really understand why. I didn’t want to transform my life into a storybook. I am a spoonie, remember? Besides, I am the mother of four children and the owner of a rebellious cat. I work from home and I don’t have that much energy to go out at all the time. It took some time, but now I am in love with Instagram. Continue Reading

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