My chronic disease is an invisible one, which means that there will always be quite a lot of things you don’t see by just looking at me. In summer, I went to my home country where I wanted to meet up with each and everybody. I had a booming social life and was surprised by my own activity level. People who know about my CLL are usually disappointed when we meet, because there is not much to see. I will tell you about the things none of them could see while I was partying.
Last year I went to see my doctor, because I wanted to plan my future with him. I had decided to make the best use of the good times I still had, but I needed him to endorse my visions. He didn’t. I thought: “When life gives you lemons, make lemonade” – and I actively looked for alternatives. Sounds easy. Isn`t easy though.
I have been on Instagram for how long…. a month, maybe? People kept telling me that I “needed” Instagram and I didn’t really understand why. I didn’t want to transform my life into a storybook. I am a spoonie, remember? Besides, I am the mother of four children and the owner of a rebellious cat. I work from home and I don’t have that much energy to go out at all the time. It took some time, but now I am in love with Instagram.