I have always had a weak immune system. Antibiotics have often saved me. I never questioned those physicians who prescribed them generously to me over the course of the years. No wonder. Antibiotics have always worked for me – so far. But what if they don’t anymore? What if a patient develops resistance?
My chronic disease is an invisible one, which means that there will always be quite a lot of things you don’t see by just looking at me. In summer, I went to my home country where I wanted to meet up with each and everybody. I had a booming social life and was surprised by my own activity level. People who know about my CLL are usually disappointed when we meet, because there is not much to see. I will tell you about the things none of them could see while I was partying.
Do you know the saying that bad news travel fast? Well, so does chronic disease. Once you are diagnosed, you are constantly aware of symptoms and their influence on your life. And within shortly, you have to adapt to a completely new lifestyle. I try to beat my cancer by being faster. As long as I am strong enough, I want to be one step ahead.
I want everything under the sun but skin cancer. Summer has always been my favorite time of the year. I have never worried whether a sun tan is fashionable or not, I just loved being under the sun, at the beach, close to the sea. Skin cancer has become an issue for me now, as CLL makes me vulnerable to other types of cancer as well.
Last year I went to see my doctor, because I wanted to plan my future with him. I had decided to make the best use of the good times I still had, but I needed him to endorse my visions. He didn’t. I thought: “When life gives you lemons, make lemonade” – and I actively looked for alternatives. Sounds easy. Isn`t easy though.