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    Chronically partying

    My chronic disease is an invisible one, which means that there will always be quite a lot of things you don’t see by just looking at me. In summer, I went to my home country where I wanted to meet up with each and everybody. I had a booming social life and was surprised by my own activity level. People who know about my CLL are usually disappointed when we meet, because there is not much to see. I will tell you about the things none of them could see while I was partying. Continue Reading

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    Work: Being one step ahead of my chronic disease

    Do you know the saying that bad news travel fast? Well, so does chronic disease. Once you are diagnosed, you are constantly aware of symptoms and their influence on your life. And within shortly, you have to adapt to a completely new lifestyle. I try to beat my cancer by being faster. As long as I am strong enough, I want to be one step ahead. Continue Reading

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    My last journey but not the final one

    Last year I went to see my doctor, because I wanted to plan my future with him. I had decided to make the best use of the good times I still had, but I needed him to endorse my visions. He didn’t. I thought: “When life gives you lemons, make lemonade” – and I actively looked for alternatives. Sounds easy. Isn`t easy though. Continue Reading

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