When I became a chronic illness patient after my diagnosis, it took me a while to realize I was part of the „spoonie community“. I found out that such diseases rarely come alone. Most of the patients seem to have a whole catalogue of afflictions. I don’t. I have CLL and my immune system does not really deserve its name, but that’s it. However, once you are a spoonie, chronic health issues seem to pop up everywhere.
I have always had a weak immune system. Antibiotics have often saved me. I never questioned those physicians who prescribed them generously to me over the course of the years. No wonder. Antibiotics have always worked for me – so far. But what if they don’t anymore? What if a patient develops resistance?
My chronic disease is an invisible one, which means that there will always be quite a lot of things you don’t see by just looking at me. In summer, I went to my home country where I wanted to meet up with each and everybody. I had a booming social life and was surprised by my own activity level. People who know about my CLL are usually disappointed when we meet, because there is not much to see. I will tell you about the things none of them could see while I was partying.